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Youth Advisory Group

YAG needs you!  The Trust’s Youth Advisory Group (YAG) makes a real difference to the lives of young people with cystic fibrosis (CF)…. and you could too!

We are a group of young people aged 14-25 who are living with CF, or close to someone living with cystic fibrosis. On paper, YAG is a way for young people to influence work at the Trust and make sure that the voices of young people with CF are heard. In practice, it's that and loads more! We chat, share, laugh and cough our way through our monthly online hangouts, and meeting amazing people along the way.

As a member of YAG, you could:

  • Influence work at the Trust
  • Make sure the voice of young people with CF are heard
  • Lead your own projects
  • Meeting amazing people
  • Make a change!

We're always looking for new people to join us, so if you're 14-25 years old and would like to get involved, drop us an email at cfyouth@cysticfibrosis.org.uk.

Jade, member of Cystic Fibrosis Trust Youth Panel

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"What I love about YAG is that we all get to use our own talents and interests to develop things semi-independently, as well as doing amazing group. I can make a difference to the lives of people living with with cystic fibrosis. We make sure the voices of young people with CF are heard and make lasting friendships along the way." - Jade, YAG member

Collage of creations for the CF Trust's Youth Advisory Group (YAG)'s #MorethanCF project

What have YAG been up to?

#MorethanCF

YAG’s last project #MorethanCF (on the Trust’s youth Instagram page @cftrustyouth) was all about bringing young people in the CF community together, to celebrate their incredible skills and talents and show everyone that people with CF are so much more than their condition. We had such an great response and celebrated so many wonderful achievements from some amazingly talented young people!

Benji's Cystic Fibrosis Food Friend 

YAG member Nicola created 'Benji's Cystic Fibrosis Food Friend' as part of her master's degree in publishing. Nicola says, "As a child, I wasn’t particularly good at remembering to take my enzymes and I didn’t truly appreciate exactly why I had to take tablets every single time I ate something.

"I thought this project would be a great way to explain to children with cystic fibrosis about the dietary requirements of the illness."

'Benji’s Cystic Fibrosis Food Friend' is designed as if it were made by eight-year-old Benji and aims to educate children with CF about the reasons they must take their enzymes but in a simple, fun and illustrative way. Nicola says, "I hope Benji’s story can help children with CF and their parents start conversations about such an important part of living with the condition."

Benji's Cystic Fibrosis Food Friend was reviewed by a CF dietitian.

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